Te Rēhita Mate Utaetae - Breast Cancer Foundation National Register holds patient data dating back to 2000 and is a long-term investment in improving healthcare quality. The longer data is collected, the more complete, accurate and valuable the data is for research and audit purposes.
“The register helps improve the care of current and future breast cancer patients.” - Dr Alison Foster, Chair of the Clinical Advisory Group
Te Rēhita Mate Utaetae - Breast Cancer Foundation National Register is committed to:
- Ensuring that that patients from all regions and ethnicities are represented
- Publishing a report on Te Rēhita Mate Utaetae - Breast Cancer Foundation National Register every two years - click here to get a copy of the latest report 30,000 voices: Informing a better future for breast cancer in Aotearoa New Zealand
- Providing audit reports for treating clinicians and clinics.
In 2000, Breast Cancer Foundation NZ (BCFNZ) began funding four regional registers as part of its 'Research for Life' programme.
The four regional registers have different inception dates:
- 1 June 2000, Auckland (Waitematā, Auckland, Counties-Manukau DHBs)
- 1 June 2005, Waikato (Waikato DHB, with data retrospectively added back to 1991)
- 1 January 2010, Wellington (Wairarapa, Capital & Coast, Hutt Valley DHBs)
- 15 June 2009, Christchurch (Canterbury and West Coast DHBs)
Te Rēhita Mate Utaetae - Breast Cancer Foundation National Register would like to thank the regional groups for their dedication and effort in establishing and building the four regional registers:
- Auckland Breast Cancer Study Group
- Breast Cancer Research Trust (Waikato)
- Wellington Regional Breast Cancer Study Group
- Christchurch Breast Cancer Patient Register
BCFNZ consolidated the four regional registers into a National Register with the support of the Ministry of Health:
- to help future-proof these valuable datasets
- to provide access in the future to data for clinical decision-making
- for scientific research and audits
The consolidation into a single, modern, web-based platform was completed in 2018.
In 2020, the decision was made to expand Te Rēhita Mate Utaetae - Breast Cancer Foundation National Register to cover the entirety of New Zealand. This goal was achieved in early 2021. Te Rēhita Mate Utaetae now captures 100% of all New Zealand breast cancer patients across the country's 20 Te Whatu Ora districts. The following Te Whatu Ora districts (formerly known as DHBs) joined Te Rēhita Mate Utaetae during the expansion, with all data backdated to 1 January 2020: Northland, Bay of Plenty, Tairāwhiti, Hawke's Bay, Lakes, Taranaki, Whanganui, MidCentral, Nelson Marlborough, South Canterbury, Southern.
Te Rēhita Mate Utaetae - Breast Cancer Foundation National Register operates as a not-for-profit charitable trust funded by Breast Cancer Foundation NZ, thanks to the generous support of forward-thinking New Zealanders. If you would like to support Te Rēhita Mate Utaetae you can donate here.